21 Mar 2025

The gene editing technology being used to treat patients with a rare swelling disorder

From Nine To Noon, 9:20 am on 21 March 2025
Graphic of 
DNZ and  image of Dr Hilary Longhurst

Photo: Supplied

The majority of rare health disorders are genetic in origin, but now a treatment using gene editing could be providing a solution for a rare swelling disorder.

Auckland Immunologist, Dr. Hilary Longhurst, led a trial that saw the first patients with hereditary angioedema receive permanent gene editing.

The disorder causes unpredictable swelling attacks and those on the trial have experienced dramatic results.

The work opens up the possibility for more individuals with rare disorders to receive help in the same way.

Kathryn speaks to Dr Longhurst and Bev Tanner who has received treatment for the disease.